Friday, March 20, 2009

A little background info

Our 5 year old son was born on April 19, 2003 5 days past his due date :) My water broke in the middle of the night and we had a beautiful baby boy 39 1/2 hours later...yes 39....hours...AFTER my water broke....i know..i know. OK so anyway we enjoyed our stay at the hospital for 4 days. Everyone came to see Adam and even the nurses doted over him. The next thing we know it's time to go home!! We stopped by hooters across the street to get some chicken (don't go there right after you have had a me on this) then went to my hubby's parent's house so they could see their new grandson outside of the hospital! The next few days were happy, tiring, and stressful all at the same time... I had started out breastfeeding but decided that Adam didnt like it because he always cried so he turned into a formula fed baby (and slept and slept....still to this day if you feed him and get him warm he's fast asleep). A few weeks later (or was it over a month? I can't remember the dates I was too tired!) The doctor told me to bring the baby in he had to tell me something. IMMEDIATELY we went into panic mode. All kinds of thoughts ran through my head... We all knew something wasnt right..he was kind of (for lack of a better word) he couldn't support his neck like most newborns can or anything....if you laid him down on the bed after a bath he stiffened his arms and legs out Photobucket so to the doctor we go...We were blessed to have Dr. Young as our pediatrician who I will reccommend to anyone in the cartersville/acworth area. Dr Young tells us that our son has XXY. It does NOT mean he is part female as far as physically.So he refers us to a genetic counselor, performs an ekg, and all that good stuff. Babies Cant Wait gets involved immediately and they are a GOD SEND ....they helped adam so much through the first 3 years of his life. We take Adam to the Heath dept for his hearing test...he fails....take him back a couple of months later, fails again...they end up having to do an ABR hearing test (google it...i dont have time to explain it lol) and find he has moderate/severe loss in one ear and borderline normal hearing in the other. around age 2 he gets his hearing aids finally!! at age 3 he started stars pre k in cartersville... I went round and round with that school until he ended up only going 2 days a week for 1/2 a day and he got his therapies outside of the school system on the other 3 days of the week. For the first 3-4 years of his life he recieved Occupational, Speech, and Physical therapy. I loved his therapists, every single one of them, but did not like the fact that they weren't optimistic. You've got to realize something about Adam....he's going to suprise you! They thought he wouldnt crawl until age 2....crawled at 13 months old was my mother's day present that year :). They thought he wouldnt walk until age 3. He was walking at 18 months old. They thought he'd have to be held back in Pre-k.. He is a kindergartener right now ....right on time. We may hold him back this year but not because of learning concerns but because he's pretty immature. Anyway children are resilient ADAM is special. Not because he needs special attention, or special help...but because he is a gift from God! He isn't perfect. Some people would say that he isnt 'whole' but he has taught us so much in his 5 short years that have taken us a lifetime to learn.

My first blog about my life with a special needs son ;)

Ok so I'm not really good at blogging yet...maybe someone can help me in that department. This is my first blog about raising my son, Adams, who has special needs. I started this blog with the intention of raising awareness for XXY (Klinefelter's Syndrome) which my son has and also so that parents, children, family and friends can kind of see into our lives and maybe someone will get some understanding on what life is like for us. I welcome everyone's comments... and honestly if you feel like a blog is "about" you ...well maybe you should think back on things...not make a big deal about it but keep it in the back of your mind to watch your words and actions when it comes to families that have children with special needs.